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New Drug Trials, Conference Recap, Q & A with MSA Expert and World MSA Day…

NEWS & VIEWS: OCTOBER 2024
IN CASE YOU MISSED IT! OUR 2024 VIRTUAL CONFERENCE!
 OUR 5th ANNUAL MSA CONFERENCE

In case you missed our 2024 Virtual Conference, follow the link belowe to view all of the English Language presentations, as well as, more than 150 other expert video lectures about MSA.

https://www.youtube.com/playlist?list=PLCnNV23SyuVpEr7fM9Wrj42mPcXuG1Ic3

 

DEFEAT MSA AWARENESS FLOAT APPEARS IN ART PRIZE
MSA took center stage in the ART PRIZE, an international arts festival! The MSA Awareness Shoe Float (the world’s first MSA awareness float) beat out 800 other entries – to secure a prized spot in the city wide art prize portfolio.

Although the float did not make it into the finalists, it was featured on both Yahoo News and FOX NEWS!


You can see and read about the float in the art prize here: https://www.artprize.org/entries#39773 (https://www.artprize.org/entries#39773)

Defeat MSA Alliance sponsored NZ Documentary
„GLIMPSES“ IS NOW AVAILABLE ON AMAZON PRIME!
„Glimpses“
This is an emotional film but it’s a film which needs to be done.

If we are EVER going to DEFEAT MSA, we need to communicate to the public what MSA is and how it affects people. Also, the film gives a GOOD LESSON on what is important in life according to one man.

AMAZON PRIME LISTING

Defeat MSA Alliance was the primary sponsor for the film and therefore, is licensed to screen the film for FREE at a future date to be announced!

„Glimpses“ – Also Available on YouTube for FREE!
WATCH ON YOUTUBE HERE –

https://youtu.be/e26xT8H7TZw?si=-4UVVNSAEt07vqru

CLICK HERE TO WATCH FOR FREE!
International Movement Disorder Society Conference 2024
DEFEAT MSA ALLIANCE EXHIBITS AT THE MDS CONFERENCE IN PHILADELPHIA
Once again Defeat MSA Alliance volunteers advocated for the MSA community at the International Movement Disorders Society Meeting
The MDS meeting is the largest gathering of movement disorder specialists in the world. Defeat MSA was invited to exhibit at the conference. Volunteer board members staffed an exhibit as well as attend lectures related to MSA.

Defeat MSA’s aim is to educate doctors about this disease and to press for more treatments and more support for all our MSA warriors and their caregivers.

Topics during the conference included: 

How to Diagnose MSA? by Iva Stankovic

Various types of Atypical Parkinson’s

Prodromal MSA (early signs of MSA)

 

DEFEAT MSA board members also met with 8 pharma companies and several other medical support companies.

REMINDER!!
WORLD MSA IS OCTOBER 3rd!
JOIN US ON WORLD MSA DAY

OCT 3, 7:00 PM CT / 8:00 PM ET / 5:00 PM PT

LIVE ZOOM SESSION

„GET TO KNOW DEFEAT MSA


HOSTED BY:

THE BOARDS OF DEFEAT MSA ALLIANCE & MSA UNITED RESEARCH CONSORTIUM

WITH SPECIAL GUEST:

DR BRANDON BARTON (MOVEMENT DISORDERS SPECIALIST FROM RUSH UNIVERSITY, CHICAGO)

DR BARTON WILL TAKE QUESTIONS

ON MULTIPLE SYSTEM ATROPHY

RSVP BY OCT 3 AT 4:00 PM ET

JENNIFER.FROST@DEFEATMSA.ORG

(We will send you the zoom link)



IN HONOR OF WORLD MSA DAY START A FUNDRAISER OR DONATE NOW – HELP US DEFEAT MSA!
4 Ways to Support Our Efforts:

1) Create a Facebook Fundraiser:
https://www.facebook.com/fund/DefeatMSA/

2) Create a Virtual Fundraiser (dedications to a loved one are possible too):
https://www.justgiving.com/defeatmsaalliance

3) Donate Directly to Our Secure Website (dedications to a loved one are possible too):
https://www.defeatmsa.org/donate-to-us/

4) Via Check, Send to:
Defeat MSA Alliance, 29924 Jefferson Avenue, Saint Clair Shores, Michigan, 48082, USA