Interdisziplinärer Arbeitskreis Bewegungsstörungen
NSTA
*’Over the years, NSTA has helped thousands of people in their search for relief from the pain and disability caused by ST.
Our services are available to anyone, and if you or someone you know has symptoms that are similar of that of Spasmodic Torticollis, please contact our office for more information and find out what we can do in terms of support.
Spasmodic Torticollis, also known as “Cervical Dystonia” and is referred to by many simply as “torticollis.”, is a painful and debilitating neurological movement disorder. Approximately 3 in every 10,000 people – about 90,000 people in the United States – are known to suffer from ST. Many of those people have not been diagnosed or have been misdiagnosed.
The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families; to promote awareness and education; to advance research for more treatments and ultimately a cure.
Spasmodic Torticollis is not an easily recognized by the general public and there are medical professionals who are not familiar with this movement disorder. A person can feel like they are an isolated case and feel there is no one that understands what they are going through.
This is not the case, there are people who understand.
Remember… You Are Not Alone!
Have Questions? Need Help?
Do you have questions about your symptoms, available treatments, or anything else concerning spasmodic torticollis?
You can email us your questions at NSTAmail@aol.com.
We will do our best to answer any inquires you have.
NSTA Toll Free Information Line – 1.800.487.8385
Our Information line is available to people seeking information on Spasmodic Torticollis.
Finding someone who understand what you are going through is difficult when it comes to Spasmodic Torticollis. Sometimes family members and friends, with their good intentions cannot provide the level of support you require because they cannot understand what you are going through. Contact our toll free information line, leave a message and your call will be returned by someone who understands, provide support and answer your inquires.‘
(*Textauszug von http://www.torticollis.org/)
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Brigitte Deimel, ausgebildete Übungsleiterin für Gymnastik und Wirbelsäulenerkrankungen und Dystonie-Erkrankte in Kirchseeon/Buch in Bayern
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Karin Wolff, Physiotherapeutin in Hannover
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